Saturday, December 18, 2010

Beating Knee Pain: The Attitude Re-Alignment

As I said here, I'm not at all convinced that issues of physical misalignment (the patella incorrectly tracking) usually explain knee pain. However, another kind of misalignment can be a big obstacle to getting better.

This kind of "misalignment" I came face to face with on one of the message boards I now frequent, where knee pain sufferers gather to share stories, advice, and from time to time, a little encouragement. Someone recently posted asking to hear from others who had "end-stage chondromalacia."

That phrasing intrigued me. Think about it for a moment. If you have "end-stage" anything, you're pretty much finished, right? If I came to you and said, "I have end-stage skin cancer," your reaction would probably be to clutch my hand, quietly murmur "I'm so sorry," then wait for me to disclose how much time I had left on this earth.

Well, it turns out there is no such thing as "end-stage chondromalacia." Or at least I've never heard of it, or read of it. I Google'd the phrase as well. Not a single hit. I doubt that a physician ever said to anyone, "You have end-stage chondromalacia."

However, I don't doubt that this person is in a lot of pain and missing a lot of knee cartilage. He or she is thinking: "My cartilage will just keep wearing down. It's not coming back. I'll just have to wait for a total knee replacement. Things won't get better."

Once you're convinced you have an end-stage condition, what does your life become? Answer: a matter of dreading the inevitable. Forget about hope. Negative thoughts dominate. Bad days are expected. Good days (or good moments) are explained away as flukes; they don't really matter because you're on a one-way street called Misery Lane.

I've been there. Early on, I was determined to beat knee pain. But I couldn't, even following my physical therapist's advice to the letter. A doctor told me my knees would never get better. And, not unexpectedly, my attitude -- little by little -- reset on me. Eventually I became an intensely negative ball of energy.

Part of healing meant doing an attitude re-alignment. It's not easy. It's hard as hell. Especially for someone like me -- I'm not by nature anything resembling a blithe optimist. But I realized my mind was working against me, and that wasn't good, so I began meditating. I just wanted to find some quiet interior space where I didn't hurt and wasn't angry all the time.

Of course meditating alone doesn't do it. You also need a plan -- a really good one if you've got "end-stage chondromalacia." You have a small margin of error.

What would I do if I were in that position?

I would seriously think about getting on crutches for a while and getting access to a continuous passive motion machine. Robert B. Salter did an incredible experiment in the early 1980s that showed an astounding rate of healing of full-thickness cartilage defects (yup, that's right down to the bone) among rabbits that were hooked up to a continuous passive motion device.

But here's the rub: at the same time, you'd probably have to go non-weight-bearing on those knees for a while, then gently introduce weight-bearing activities. I don't know exactly how this plan would be carried out. Right now this is just me musing aloud, trying to find a solution. Because trying to find a solution is positive at least.

I hope this knee pain sufferer can connect with a really smart physical therapist, someone like Doug Kelsey at Sports Center. If I were this person, I would even consider moving to Austin, Texas (where the clinic is). As I say in my book, a good physical therapist is worth his (or her) weight in gold.

That's because the best way to kill a negative attitude is with a plan that shows there is a path to getting better. Who cares if it's a long one? As long as you can see the light, and see the way to move toward it, you have some hope. And that's really important.

4 comments:

  1. I'm just so thankful to have found your blog. Thank you SO much for sharing your well-researched information and methods. I am working diligently to get my knees back!

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  2. I just found your site today!! I'm excited.

    I have the same old story... knee pain, ortho dr, pt, no impromprovement, post-pt recommendations made me worse. I went from one knee with pain to both knees, a hip and a few sprains in my back from compensating.

    And then I went to Austin for a week to get a plan from Sports Center :) I lived in Atlanta. It was so worth the trip. They gave me an at home plan and some equipment to buy. About 10 months later I slowly started running again. Pain free :) Oh my gosh were the set backs tough to take!

    Now I am applying what I know about joints to rehab my dog's elbow...he's got some nasty looking cartilage, looks like confetti. It's been about a month and he was actually jogging for 90 seconds, walking 3 minutes, for 30 min total - which of course is fantastic! And then my husband let him jump out of the car... back to square one, or pre-square one. Ugh.

    Finding your site was the encouragement I needed today. Thanks so much!

    Did you notice proprioception deficits caused from knee pain? Did your foot drag or did you trip or misjudge the steepness of steps??

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  3. Interesting comment about the proprioceptive deficits ... I consider myself fairly observant, but did not notice this in particular. However, to be fair, there was a certain amount of poor functioning of my legs while walking that I attributed to having weak muscles/hurt knees ... but it could have been something else.

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  4. One second to vent pls - I know you get it.

    Dog and I are in the midst of yet another set back and I'm PISSED. So angry I can hardly stand it! Recovered beautifully from the last one - speed, distance and proprioception were improving nicely and then in a split second he hurt that elbow again. Argh! I know it isn't square one, more than likely. Why is it so infuriating???

    Both my knees and one of my hips was damaged and I remember misjudging the step-down from curb to street and landing too hard. It hurt!!! I know I had spacial deficits.

    Proprioception deficits are how I am judging progress/setbacks with dog. After too great a speed or distance or impact he fails to pick up his foot/leg high enough so sometimes his nails drag - I can hear it. If they drag hard enough it trips him. Ex: Yesturday morning he could walk on the treadmill for 25 min at 1.9 mph w/o trouble. Today, after a fall late yesturday, he walks at 1.2 mph for 15 min with frequent drags. I dont' know if it is also stiffness or pain- either way, it is a sign of a problem.

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